“Even one voice can be heard loudly all over the world in this day and age.”
I was just reviewing some old posts on this site, and realized I haven’t posted any info on how Little Bird is doing for some time.
So, here’s where he’s at.
Little Bird’s Down’s appears to be a mild case, but we’re monitoring symptoms daily. Each morning, we put him into the “Down Syndrome-a-Ton 3000″ to get a new reading. The doctor says that because his readings have been ”mild” for 6 months, we can officially say his Down’s is in remission.
Okay, all that was smart-ass bullshit.
It’s the silly response to a silly observation from a business vendor who was making a sales pitch to me over lunch a few weeks ago. The observation was that Little Bird’s Down Syndrome looks mild. I used the moment as a “teaching point” – explaining that Down Syndrome doesn’t work that way.
Sometimes, though, I just need to be a smart-ass.
Down’s Syndrome manifests in a unique way in every person. Some folks use the words “high-functioning” or “low-functioning” to describe where on the spectrum their child with Down’s is performing.
I absolutely reject those categorizations, and will never use them.
Whether a child has Down Syndrome or Neuro-Typical Developmental Syndrome, the child will develop at their own pace and in their own way.
Little Bird is doing very well:
He is rolling over back to front on his own. He’s been rolling front-to-back since he was 6 weeks (his mother is an over-achiever, too).
Little Bird is working on his fine motor skills. He can pick up a 3″ wood block and drop it in a pan. He can pull hair and remove hats and eye-glasses like a seasoned professional.
He has been eating solid food for about 2 months, and we started making him feed himself. We tape a bowl to his food tray, fill it with mashed food, softened carrot sticks, and bananas. He is grabbing chunks of food and learning to get them to his mouth.
We have started exercises to strengthen his upper body. His ability to put weight on his arms is what stands between him and sitting up on his own. He’s resisting these exercises, but that is genetic: his Da-da is a non-exercising slug, too.
He’s been working on his sense of humor. He had a giggle fit while I danced to ‘Muzak’ in an arts-and-crafts store. He had a giggle fit while I tried to find a particular bottle of rum at the liquor store. He recently had a giggle fit as I imitated the sound a lawn sprinkler makes. I have no idea what ties all of that together.
Little Bird will spend all day playing with the toy pictured below. He is learning to reach, push and grab with this toy, and LOVES looking at himself in the little mirror.
(Parent Warning…this has only a few really annoying songs/sounds: you will start hearing it in your sleep).